How do activists develop the knowledge they need in order to
make credible claims, particularly in movements which deal directly with
technology, rather than social identity? That question, combined with my own
history as an environmental activist, an intense curiosity about the new
biological fields which were emerging in the wake of the Human Genome Project, and
my involvement with the Feminist
Archive North (FAN), led me towards the topic of my PhD, discussed in an article recently published in Sociological Research Online.
More important, I quickly found that FINRRAGE's form of
'resistance' was not accounted for in either resource mobilisation or new
social movements theory. The network did not seek to promote mass street-level
protest, and although local groups and individuals did occasionally create
protest actions or join larger campaigns against specific technologies using
the name of FINRRAGE, there was never a co-ordinated, FINRRAGE-sponsored international
campaign. Instead, the women mainly engaged in what one respondent notably
called 'demonstration in publication', a tactic which required verifiable facts
-- such as success rates, risk factors and psychological impact of undergoing
IVF -- which did not exist in the mid-1980s, when the network began. Because
FINRRAGE had a disproportionate number of women in both industrialised and
developing countries with advanced degrees, their strategy was therefore geared
towards developing and communicating both technical and non-technical knowledge,
so that women around the world could engage in public debate on their own
terms.
How then to study this kind of activism? As a science and
technology studies (STS) scholar, and a former activist who has frequently been
asked to decipher highly technical publications to bolster the accuracy of campaign
information leaflets, I have long been interested in the way knowledge
functions as a component of protest. Within social movements theory there is
one model which has been developed to study these kinds of questions, the
cognitive praxis (CP) paradigm developed by Ron Eyerman and Andrew Jamison (1).
This gives a formal structure through which the organisational, technical and
cosmological (or underlying belief-system) aspects of a movement can be
reconstructed through the documents it produces.
The FINRRAGE collection at FAN includes books and peer-reviewed
articles published by FINRRAGE women in English, French, German, Spanish,
Portuguese, and other languages; a research archive of newspaper cuttings,
scientific papers and governmental reports; as well as organisational correspondence,
minutes, newsletters and other internal documents. Supplemented by lifecourse
interviews with twenty-four FINRRAGE activists from a wide range of countries,
it was therefore well-suited to a cognitive praxis approach.
The CP paradigm has some limitations which the case of
FINRRAGE made clear – for example, despite its acknowledgement that science and
society are intertwined, CP is still based on normative assumptions about
science, scientists and technical experts existing in a separate sphere from
the 'messy' movement field. FINRRAGE showed that both social and natural scientists
can and do become centrally active in social movements, bringing their
understanding of data, information, and evidence into the movement field to be
shared and utilised, whether or not the topic of the movement corresponds to
their professional expertise. While still identifying primarily as FINRRAGE
activists, the women were able to carry out some of the first systematic
studies on the experiences of women on IVF programmes, on clinical success rate
reporting mechanisms, and on variability in dosage, outcome and side effects
for the most common drug used for ovarian hyperstimulation, and to publish and
use this counter-knowledge when arguing against scientific claims of safety and
efficacy. FINRRAGE women also produced some of the first PhD dissertations in
the area, thus helping to legitimise it as a valid topic within traditional
disciplines, and for several years published a peer-reviewed journal, Issues in Reproductive and Genetic
Engineering, which gave both academics and activists a specific arena in
which to publish. Additionally, because various legislatures were intensely
debating regulation of IVF and embryo experimentation at the same time FINRRAGE
emerged, there was an unusual window of opportunity to offer a woman-centred
analysis comprising both technical and social scientific expertise to these
consultations, some of which is reflected in subsequent legislation.
Drawing from work on expertise and epistemic communities
emanating from STS should help to overcome some of the limitations of the CP
paradigm. However, as its use in the study of FINRRAGE showed, it can be an
effective tool for studying the ways in which activists use social scientific
data in order to create counter-arguments for new technologies whose systemic
risks cannot actually be scientifically gauged. It also showed that some of FINRRAGE's
technological topics, such as unregulated expansion of international commercial
surrogacy, should remain of great social, as well as social scientific, concern.